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Here’s my raw and vulnerable story that I don’t share often…

I know we are all told that we are one of a kind, but if you are in the medical world and you have a rare disease, then they refer to you as a zebra and I AM A ZEBRA! Every 1 person in 4 million people have my condition!I have a genetic mutation to tumors called pheochromocytomas/ paragangliomas (big words…I know:) that are incurable but I refuse to give up hope. They are elusive, difficult to detect, and often misdiagnosed. Fear has gripped me since I was 18, knowing my aunt lost her battle. But now, at 52, I'm grateful for life and doTERRA, giving me strength.

Read more about my journey of hope and empowerment.

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Back in June of 2020 I was driving down to a retreat in St. George with a woman that I had never met before, who also lived up north. As we were driving down, my new friend was in doTERRA and she told me her story and how she started…long story short, she has MS, but you would never know it. And I remember the time in her story that she said she puts a drop of frankincense underneath her tongue every day. And there was something about that moment that I will always remember because it was really a soul nudge and I remember thinking “What If?” and that I needed to pay more attention. I would consider MS a serious medical condition that was being solved by these oils and I really felt strongly that it could be answer to my health concerns also.

The tumors are called pheos/paras and I’ve always been told there's not cure for them, only to remove them surgically. Since I was diagnosed, they have now been classified as a cancer. Needless to say, I have been really FEARFUL since I was 18 years old...all I knew is that my aunt who has the same tumors had died when she was in her early 30’s with 3 young kids, there’s no cure, they are very elusive and can be very difficult to find, they are also called The Great Mimic because a lot of their symptoms are similar to other diseases so many times people will get wrongly diagnosed.

I really felt like if I made it to 50 or to see my kids graduate that would be a huge win, because any years I got beyond 30 (when my aunt died) was a gift. By the way, I’m 52 and grateful every day for the life I have!

When people would ask me if it was cancer, I would always downplay it even though I knew that it technically was because it had spread and metastasized and I’d had another surgery since my first one to remove more of them. I hated talking about it because I never trusted my emotions and I really felt like if I talked about it , it would make them more real and if I denied they were in there, that was better!

I know tons about these tumors… sometimes more than my doctors. I had genetic testing done when I was in my 20’s to figure out what my genetic mutation was and the thing that hurts my heart the most is that my kids have a 50 percent chance of getting and having to live with them too. I can say that I have had every kind of test done to my body including a barium enema...which if you know anything about barium and then combined with enema...it’s not the most fun:(

Let me bring this back full circle... doTERRA has given me HOPE! To say that this company and these products have empowered me is a huge understatement!! It has given me a voice, they have helped make me more BRAVE and COURAGEOUS because WHAT IF???

They know so much more now than they ever did when I was first diagnosed. They have organizations that have been established to spread awareness on Neuro Endocrine Tumors... they have support groups, and there’s actually a Facebook group called the Pheo Para Alliance that I am volunteering for and starting to share my story with them.

Like I said, the last few months have been a journey of empowerment. I don’t know what the future holds, but who really does? But - What if I have natural solutions to help with high blood pressure? Or help with the increased heart rate? Or with my fight or flight symptoms? Or the headaches that come with it?

Or, what if frankincense shrank my tumors and helped provide a cure… WHAT IF?

I’ve also figured out my WHY recently.

When people talk about their WHY’s and how it’s their families and their kids, I’ve always felt a little bit bad because I’ve never really felt like that is mine… even though I love my husband and kids immensely!

My WHY is to find answers, to help move the needle on the research for these tumors, to donate tissue, to raise awareness for rare diseases and to support other zebras who are dealing with these pheos and paras and the range of emotions that comes along with them!

Most importantly, my WHY is to help others find HOPE!!